Neurological Side Effects

[Vulture]

I need to vent a little as I tend to keep things to myself.  After my aneurism operation, I've had a couple of seizures.  Those are under control.  The seizures never scared me.  They are the "tonic clonic" types or "grand mal" whatever you wanna call them, so I wasn't around for them and therefor never happened to me.

However, what really gets me are these "auras" that come prior to a seizure.  It starts with a high pitch "tinnitus" squeal from my right ear followed by an electronic zapping sound in my left, kinda like old TUBE tv's with a bad circuit board.

Then it feels like someone is pricking me with a needle so my head jerks to the left side.  Then a rushing anxiety feeling comes from my stomach and goes to my chest, then an insurmountable feeling of dread and fear sinks in.  It feels like it lasts forever, but in reality probably less than half a minute.

The only relief is when the seizure finally comes.  As I calm down, so down and can feel myself drifting off.

But over the past year I've been having "Aura-light's".  Basically a toned down but equally scary version of the aura's.  But nothing ever happens.

So I go around all day nervous of it happening.  It's tiring and sucking the life out of me.  I'd like to get the operation to remove the part of the brain that causes the seizures.  The seizures are located in the Temperal Lobe so a good candidate. 

In Norway, it will take a year to get the operation from you being done with the required testing which itself could take a year to complete.  So two years, and I have no plans of staying in Norway that long.  Maybe 6-12 months more before being able to move back to the U.S. for good.

I'm just fed up.

[Sirius]

Cool post. I hope you have respite soon. Sounds just like a UFO encounter and some other stuff. Even possible to induce such things

[DontTreadOnMe]

I need to vent a little as I tend to keep things to myself.  After my aneurism operation, I've had a couple of seizures.  Those are under control.  The seizures never scared me.  They are the "tonic clonic" types or "grand mal" whatever you wanna call them, so I wasn't around for them and therefor never happened to me.

However, what really gets me are these "auras" that come prior to a seizure.  It starts with a high pitch "tinnitus" squeal from my right ear followed by an electronic zapping sound in my left, kinda like old TUBE tv's with a bad circuit board.

Having seen grand mal seizures I can say they are scary to see when they happen to you.
I guess you could say you're lucky to have thee aura....gives you time to make yourself safe and less a target for seizure related falls and injuries.
I hope hey can fix it for you.   And sooner rather than later.

[Vulture]

Having seen grand mal seizures I can say they are scary to see when they happen to you.
I guess you could say you're lucky to have thee aura....gives you time to make yourself safe and less a target for seizure related falls and injuries.
I hope hey can fix it for you.   And sooner rather than later.

Indeed, but the auras are so scary that I would rather have a random fall than deal with the warning.  They are that bad.  And thank you. 
 

Cool post. I hope you have respite soon. Sounds just like a UFO encounter and some other stuff. Even possible to induce such things

Thanks, I try not to induce anything lol.

--

Let me tell you about my first ever aura / seizure.  This was about four months after my surgery.  My fiance was visiting me, she was tidying up a bit and I felt a little tired so went to the room.  The second I opened the door I heard a "ka-klink, ka-klink" mechanical sound.  I wasn't sure what that sound was, I sat down on the bed and tried to concentrate on where the sound was coming from.  I closed my window and it was still equally loud. 

Then it dawned on me, "is it coming from inside my head?  I plugged my ears, and sure enough it was.  Then all of a sudden this anxiety / fear hit me.  It felt like I was being surrounded by something bad, something really bad.  I can't explain it.  So I shot up off the bed and went out to my fiance.  

I went to my fiance in a panic and I was like, "I don't know what's happening, they're surrounding me!".  The look on her face was unforgettable.  I remember getting really tired, and in my head I said "I'm just gonna lay down" and which I did or so I thought.  As what happened in my head VS what happened in reality were two different things.

I never said "I'm just gonna lay down." As I stood there for a second motionless before slumping down against the wall where the convulsions started.  

911 was called, they thought I had a brain bleed.  They found out it was "just" a seizure.  They sent me to the local hospital for watching and putting me on lamotigrine and eventually sent my way.

Every day since has been a living nightmare.

[sahgwa]

Indeed, but the auras are so scary that I would rather have a random fall than deal with the warning.  They are that bad.  And thank you. 
 
Every day since has been a living nightmare.

It can't even compare, really, but I get the same feeling of anxiety that I am trying to just push to the side whenever I get a dash of 'dizzy' or 'almost dizzy' from my ear disease.  Because that is often the warning of an incoming vertigo attack and then I feel like a useless POS because I can't even walk properly let alone drive or work normally. 

Bodies teach us a lot. Also depress us too. 
Strength to you.

[Vulture]

Strength to you.

And to you.

[Unknownparadox]

I need to vent a little as I tend to keep things to myself.  After my aneurism operation, I've had a couple of seizures.  Those are under control.  The seizures never scared me.  They are the "tonic clonic" types or "grand mal" whatever you wanna call them, so I wasn't around for them and therefor never happened to me.

However, what really gets me are these "auras" that come prior to a seizure.  It starts with a high pitch "tinnitus" squeal from my right ear followed by an electronic zapping sound in my left, kinda like old TUBE tv's with a bad circuit board.

Then it feels like someone is pricking me with a needle so my head jerks to the left side.  Then a rushing anxiety feeling comes from my stomach and goes to my chest, then an insurmountable feeling of dread and fear sinks in.  It feels like it lasts forever, but in reality probably less than half a minute.

The only relief is when the seizure finally comes.  As I calm down, so down and can feel myself drifting off.

But over the past year I've been having "Aura-light's".  Basically a toned down but equally scary version of the aura's.  But nothing ever happens.

So I go around all day nervous of it happening.  It's tiring and sucking the life out of me.  I'd like to get the operation to remove the part of the brain that causes the seizures.  The seizures are located in the Temperal Lobe so a good candidate. 

In Norway, it will take a year to get the operation from you being done with the required testing which itself could take a year to complete.  So two years, and I have no plans of staying in Norway that long.  Maybe 6-12 months more before being able to move back to the U.S. for good.

I'm just fed up.

I can sympathize with you. I don't have seizures, I have PVC= 
"Premature ventricular contractions (PVCs) are extra heartbeats that begin in one of the heart's two lower pumping chambers (ventricles). These extra beats disrupt the regular heart rhythm, sometimes causing a sensation of a fluttering or a skipped beat in the chest."

While the description sounds like no big deal. Trust me it is every bit a big deal. 

These started in 1998 I do believe they were thanks to Darvon, I was prescribed it for pain after being run over by a drunk driver, and having quite a bit of orthopedic surgery. Darvon killed a lot of people outright and damage a lot of other peoples heart. It only took the FDA half a century to figure it out.

My PVC's are extremely unpleasant, some are painful. Some make me very dizzy, sometimes my heart gets stuck in PVC mode, for as long as 20 minutes. And I can feel when the long sessions start to come on. But random ones hit me completely by surprise, it actually feels like my heart has stopped. I equate it to someone holding a gun to your head, saying, I might kill you now, or maybe now, how about now.

They would come and go, never any rhyme or reason, other than changing position usually sets them off, sometimes when I sit down or stand up, But almost always when I lay down. I have been on a number of heart medications, none helped. I can't count the number of times I have been to the ER since 1998, or cardiologist I have seen. 

I did finally get some relief about 3 years ago, by accident the last ER visit I had. They gave me lorazepam it is used to treat all kinds of things. For some reason or another it has really helped. I still have them but no where near as bad or frequent.

But for 24 years it was, a living nightmare.

Hang in there don't give up. I use to tell myself, you done this before, it will pass try to remain calm. I know it isn't much. All I can say is I feel for you, And I hope you find some relief soon.

[Vulture]

I'm very sorry to hear that, Paradox.  That does sound horrible and extremely unpleasant.  I'm glad you found some relief from that horror.

[DontTreadOnMe]

Indeed, but the auras are so scary that I would rather have a random fall than deal with the warning.  They are that bad.  And thank you.   

Yeah, auras are scary.
I get visual auras before my migraines hit.
The cause anxiety because you know what will happen if you cannot get your meds fast enough.
They disturb my field of vision to the point I cannot red or drive.
It's a mad rush to take my medicine to avoid the brutal headache.
So a scary early warning device.

Are your auras in your head or visual?

[Vulture]

My aura's are physiological and not visual.  Sounds scary, but in my case medicine won't stop what's coming.  Migraines are no joke.